5-21-2018
Hello All,
This has been a rough several weeks for us. Brian’s blisters on his leg popped, but the scabs that started forming looked a little infected so we took him to see the family doctor. The doctor put him on an antibiotic and told Steve to use Neosporin. When Steve used it, the blisters started to weep. I am assuming that this is the infection being leached out. Anyway, we have been sort of house bound as Steve does not want to take him out anywhere with it open in case of an infection. He does have stuff to bind it, if necessary but the doctor suggested we keep it open as much as possible. Brian has not been able to do any of his leg therapy or ride his stim bike, which has not made him happy, as well as having more spasms. I had rescheduled his MRI for Thursday but Steve doesn’t want to take him into the hospital and a possible source or MRSA or other germs, and I agreed. I have rescheduled his MRI now for the end of June, after Steve has his surgery.
Our caseworker has been working for two weeks trying to find us someone to come in and help with Brian while Steve is recuperating for the first 2-3 weeks. She has not been able to find someone, so now we are looking into nursing agencies, hoping that we can submit it to the insurance. It has made me very nervous for Brian’s future. Because of the level of care that he needs, agency aides are not able to provide the care with their skill set. The caseworker said Brian would have to go to a nursing facility. I said to her that she needed to look into this for the future because this house was built for Brian and it was not sensible to send him to a nursing facility. I am very worried about all of this and am trying to be proactive. My niece, who works with elderly and disability placements is trying to help me. She was able to find a nurse who can come twice on the day of Steve’s surgery just to help with Brian. Scott is going to stay with him that day to feed him and be here, but Scott can’t do his care. I am very frustrated with the system that would put my vibrant son into a nursing facility because of his needs, which can be handled at home. As usual, it is based on money. Medicaid and Medicare do not pay for the quality of care that people may need. If anyone knows of any solutions to look into, please let me know.
Please pray that we can find the help we need so that Steve can have his surgery and not worry about Brian. Also, please pray that science, medicine, and God can restore Brian’s function enough that he can look after himself in the future. Our policy makers need to explore other options for adults who have special needs so they are not treated like nuisances, put out of sight, out of mind.
Love,
Dawn
127 Responses
Is that true? I’ll spread this details. Anyway, awesome material
Hi, I just discovered your blog via yahoo. Your post is truly pertinent to my life right now, and I’m really delighted I found your website.
This is the right website for anybody who hopes to find out about this topic. You understand a whole lot its almost tough to argue with you (not that I actually would want to…HaHa). You definitely put a brand new spin on a subject that has been discussed for ages. Excellent stuff, just excellent.
This is a topic which is close to my heart… Take care! Where can I find the contact details for questions?
After exploring a few of the articles on your web page, I honestly appreciate your way of writing a blog. I saved it to my bookmark webpage list and will be checking back soon. Please visit my website too and let me know how you feel.
This is a topic that is near to my heart… Best wishes! Where can I find the contact details for questions?
Amazing write-up! I’ll subscribe right now together with my feedreader software package!?-
I will be brand-new to blogging and also loved your internet site. I will bookmark your blog and keep checking get you started. Thanks for sharing your internet site.
After I originally commented I seem to have clicked on the -Notify me when new comments are added- checkbox and now each time a comment is added I receive 4 emails with the same comment. Is there a means you are able to remove me from that service? Cheers.
Thanks a lot for being my mentor on this issue. My spouse and i enjoyed your article very much and most of all liked how you really handled the aspect I widely known as controversial. You happen to be always incredibly kind to readers really like me and assist me in my life. Thank you.
I used to be born on a Friday, but not last Friday.
The movie stars Lenny Von Dohlen, Virginia Madsen, Maxwell Caulfield, and the voice of Bud Cort.
Aw, this was a very good post. Finding the time and actual effort to produce a great article… but what can I say… I procrastinate a lot and never seem to get anything done.
I believe this site has some really great information for everyone : D.
You actually make it seem so easy with your presentation but I find this topic to be really something that I think I would never understand. It seems too complicated and extremely broad for me. I am looking forward for your next post, I will try to get the hang of it!
The rationale the X2 was chosen was that Sweden (like most different nations) has very curved railways, and not enough traffic to justify constructing special high-velocity railway traces (not less than earlier than 1990).
Excellent blog you have here.. It’s hard to find quality writing like yours nowadays. I truly appreciate individuals like you! Take care!!
Honorary pallbearers will be the mens Bible class of First Presbyterian Church and Leonard Schweinle, William E. Schweinle Jr.
I truly love your blog.. Very nice colors & theme. Did you create this website yourself? Please reply back as I’m wanting to create my own site and would like to find out where you got this from or exactly what the theme is named. Many thanks.
It’s hard to come by educated people in this particular subject, however, you seem like you know what you’re talking about! Thanks
I was able to find good advice from your content.
He had beforehand proven the van pictured on the cover in various posts.
Way cool! Some very valid points! I appreciate you writing this post and also the rest of the site is very good.
Because of its implausible course curriculum and wonderful infrastructure, that is undoubtedly one of the top hospitality management faculties on the earth.
Greetings! Very useful advice in this particular post! It’s the little changes that produce the most important changes. Thanks a lot for sharing!
After dropping out of Brandeis’s PhD program when he realized he did not need to teach, McDowell discovered work as a secretary whereas writing on the facet.
You’re so interesting! I do not think I’ve truly read a single thing like that before. So good to discover somebody with a few original thoughts on this subject matter. Seriously.. thank you for starting this up. This website is something that is needed on the internet, someone with some originality.